IDKA
Ipswich & District Kidney Association
Welcome to the July edition of NKF In Touch with KPAs newsletter. Thank you for all the positive comments we have received regarding the production of this newsletter. Please forward any articles etc that you would like sharing via the next newsletter to Andrea Brown andrea@kidney.org.uk by 8th August .
Contents:
Action Points
NKF Conference
Kidney Life
Joint Fundraising
Information
NKF Advocacy Vacancy
We are family
Young Adult free activity weekend
Recycling
Transplant Games
Postponement of the Dialysis games
NKF Patron takes part in BBC game show
Who NKF seeks to influence:
NHS England
NHSBT
Department of Health
Government Ministers
Welsh Government
Northern Ireland Assembly
Scottish Executive
All Party Parliamentary Kidney Group
Trusts and Hospitals
NKF Conference
You will have received an email on 2nd July from NKF inviting your KPA to exhibit at the Conference In October. Don’t forget to book your exhibition space, as places are limited and on a first come first served basis. Bookings close on 29th August. For further details please contact Steph Allen on 01909 544999 or stephanie@kidney.org.uk
KIDNEYLIFE
Following the distribution of the spring edition of Kidney Life 144 copies of the magazine were returned to NKF through the post. This was because the recipient no longer lived at the address we had on our database.
KPAs can help by informing us of any changes to their members lists, and by asking their members to inform HQ if they have a change of address.
Please send updates to Linda Fores by the 1st of each month Linda@Kidney.org.uk or call 01909 544999
KPAs joint Fundraising with NKF
If you are considering a large fundraising event please call Pete Revell our Head of Fundraising before the 1st of each month to ensure the event is in Pete’s event diary. Pete can be contacted on 01263 722287, he will give you help and advice and may even organise the whole event for you. Joint events with KPAs so far have been sponsored walks, cycle rides, parachute weekends, Advent services and lots more.
NKF Advocacy Vacancy
This vacancy has now closed, and interviews have taken place earlier this week. We will let you know who the new North West Advocacy Officer is in the next edition.
Nick Palmer – Head of NKF Advocacy went to a special screening of We are Family on Tuesday 1st July – an inspirational film highlighted on page 8 of Kidney Life.
The film is 34 minutes long and encapsulates perfectly the fears, challenges and dynamics of a family coming to terms with a diagnosis of kidney failure. Focusing on an African Caribbean
family the story has obvious wider appeal to the whole kidney community - it is dedicated to raising awareness of CKD, dialysis, donation and transplantation.
Dela Idowu who wrote and produced the film has a mission ‘to get We are Family in every home and family where someone is living with kidney failure’.
If you would like a copy of the DVD they can be purchased at www.wearefamilyfilm.co.uk at a cost of £7.99 each.
What is it?
A chance to get away and meet other young adults from across the UK. Activities will include Archery, walking, cycling, social events and many many more.
Who is it for? - The Weekend is for everyone aged 18 – 30 who has Chronic Kidney Disease. This includes people who have had a transplant or who are on dialysis.
When and where is it? - Friday 12th September (evening) to Monday 15th September 2014(morning) at Ravenstor Youth Hostel, Derbyshire.
How much does it cost? - The weekend is free to attend. This includes all of your meals, activities and accommodation. You will just need to pay for your travel to and from the venue.
How do I book my place? - You can book your place by either contacting the Young Adult Worker at your unit or by e-mailing matthew.tomlin@nhs.net
Recycling]
Clothes recycling collections - request a bag
A new, secure and simple way to donate clothes to the NKF – request a bag on line and it will be posted out to you and once you have filled it, it will be picked up with no cost to you or the NKF and the NKF receives a nice donation.
How does it work? Click here to see http://www.clothesforcharity.org.uk/how-it-works/ please sign up to receive your clothes bag http://www.clothesforcharity.org.uk/sign-in/
The British Transplant Games are coming to Bolton from 7th – 10th August 2014, sadly on line registration is now closed but if you are lucky enough to be going, come and see the NKF stand on the Sunday where you can pick up some free NKF goodies and buy one of our very popular NKF gave and receive t shirts.
Postponement of the Dialysis Games 2014
The Dialysis Games committee wish to announce the postponement of the Dialysis Games 2014 scheduled to take place on 21st September 2014 at the University of York.
At present insufficient financial resources are available in order to properly stage the Games we are aspiring to and this, together with the need for additional time to ensure robustness of event plans, has lead to the decision to postpone until summer 2015. The organisers hope this will not cause undue inconvenience and disappointment to those who planned to participate in the Games and to offer support to the event.
A new schedule of fundraising events and news on the Games 2015 will be planned and published on our website – for details please see www.dialysisgames.co.uk
We hope to see you all at the Dialysis Games 2015.
NKF Patron Nina Wadia takes part in BBC’s Pointless Celebrities
Tune into BBC 1 on Saturday 16th August to watch NKF Patron Nina Wadia take part in the game show Pointless Celebrities. NKF have been informed this programme will be transmitted between 18.00 – 20.00.